Matthew 28:20 Lo, I am with you always
I have now spent a few days in the Dawn Special Needs Centre. It is located in Bukoto, Kampala. Within one day I was absolutely sure that I was where I was supposed to be, but more than that I could see the overwhelming need that the centre. My first couple of days I spent observing, then after that Florence met with me to explain what they wanted me to do while I was here. I will be working with Rhoda, the administrative assistant, organizing their database, and going through their publications, computer files, and hopefully putting some systems in place that will make the centre run more smoothly and easily on a day to day basis. But all of that isn’t as interesting or fun to hear about as the kids, so I am going to tell you about themJ
The day was really good. I fall so much more in love with the kids everyday. I can already tell that leaving them will be really hard. They are all SO precious, and I am doing a lot better with the special needs than I thought I would. I was scared to interact with the really disabled kids because I was nervous I would do something wrong. But now I feel comfortable playing with them and moving them, and I even feel comfortable feeding them. I am not sure if you want to know, but I am going to give you a list of most of the kids so I can talk about them and you have an idea who they are.
ok here we go.

Esther- one of my favorites. She is four and is the size of a two year old, well everything except for her head. She has what they call water head. Her head is twice the size of what it should be. From what I gather, she has too much water in her brain, so recently she had brain surgery to insert a channel that takes the excess water to her urinary tract. Because of that she has to pee (tsu tsu) all the time. She is so cute because she speaks really well, and she uses proper English. She sounds like an on English woman. One of her favorite lines when she is taking a bath is “oh no, I am naked!”
Tutu- he is 8 and a quadriplegic. He cannot walk or sit up on his own. He has such a happy personality and already knows my name. You cant really understand what he says, but you can tell that he recognizes you and knows your name. He is really hard to feed because he has really bad congestions problems and has a hard time holding his head up, so swallowing is quite the task.
Fafhad- he is close to being the cutest. He doesn’t look disabled, and I am not sure exactly what his problem is. He is probably 4 and he cannot stand or walk on his own, his legs and arms do not work very well. I call him the “drool monkey.” The amount of saliva he produces in inhuman. but he is a happy kid, and loves to cuddle.
This is Joel.
Joel and Cynthia are very autistic, so they can function physically normal, but have a very hard times in social settings. I would say Cynthia and Josiah (who is the only downs kids) are the hardest kids in the center. For some reason, Joel tugs on my heart strings. He literally does not respond to anything you say.. it’s like it’s a blank wall in his head. But he came up out of no where yesterday and wanted a hug. Then today he fell asleep on me. It was great.

Abdullah is literally as skinny as you see in the commercials for starving children. He is 10 years old, has a disability that make his legs and arms deformed and he cant talk, and he wears the size of a 1 year old. Yes he is ten, and as skinny as a baby. It is the saddest thing I have ever seen. He is severely neglected too. He cannot talk or move for the most part and his family leaves him in a small dark room, where he falls off the bed all the time and they leave him there. He has scars ALL over his body. The government, as well as the culture, does not put any value into the disabled because they think they will never be able to give back to society. In turn the attitude about the disabled is that of shame. So sad.
There are more, but I haven’t gotten to know all of them as well.
In a meeting with Florence today, she was telling me how they cannot support themselves because many of the parents cannot afford to pay what the real rate should be, if they can afford to pay anything at all. If they don’t think of something to generate income and fix the problem, then the center will close. It closing is not an option because it is the ONLY thing of its kind in all of Kampala, which is just crazy. I am going to start brainstorming about ways to generate funds for the center. maybe set up an “adopt a child” thing for people at home. It costs about $10 a day for each kid to get two meals, day care, and the PT and OT, and some times other kinds of therapy. I am sure some way people would be willing to sponsor like 1 week a month, or even 1 kid a month… I don’t know…. ok that was me just thinking out loud.
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We just got done with dinner. I helped Vera make rice, gnut sauce (which is this disgusting looking brownish/purplish peanut sauce from Uganda, but it tastes good), and beans with some veggies. It was a very Ugandan meal. The food here is not that bad…but not that good at the same time. Today was my day to help the cook, Vanessa, in the kitchen at Dawn. She showed me how to make porridge and we served that and bread/butter for breakfast. Then I made juice from scratch with passion fruit, oranges (they are green here, it is silly they are called oranges), mango, carrots, sugar, and water. It’s really not that good, but it tasted like the way she made yesterday, so I think I did a good job. Then we made potatoes, meat, cabbage, and spaghetti noodles plain. It is a little disturbing to watch her cook the meat. She adds all the bones and fat into the pot, and then you get that on your plate. Then you eat it and you get bits of bone…yuck. Actually, with a lot of the food you get hard particle of dirt or bone.
****************************************************************************************Tomorrow I will have been here a week. Honestly, I feel as if I have been here for much longer. God has blessed me so much in this with my roommates. I really don’t know how I would be handling this all if I was alone, or even with other people. He really knew what he was doing when He sent me here
J When we get home at night its so comforting to be around them and we have a lot of fun.
Oh, I am also working on organizing ways for people at home to help the Dawn Centre. I am going to get a list of supplies they are in dire need of, and hopefully I can get some stuff sent over here for them. The centre also needs money to build a hen house. One ways that they are going to generate income is by keeping chickens. That will allow the children a great learning experience, provide food, and also income if they decide to sell them. Florence asked me to pray about organizing that. So, all in all, if you are interested in helping out, let me know.
J I will keep you updated on final plans for whatever program I set up!
Sending love from half way across the world. Go with God!
Matthew 28:20 Lo, I am with you always